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Frazzled and Faith-Tested? Let Me Introduce You to Grace

Frazzled and Faith-Tested-Let Me Introduce You to Grace

Do you see that?

Hear that?

Sense that?

People are watching us. They want to see how we do this whole life thing with faith in Christ.

Will we slip up? Will we yell at God? Will we forget what the cross was for?

I can’t really say. Some of us might.

Life is hard, and the fluffy moments are not really what faith is for, are they? Sure, faith is present in those moments, but faith is not tested when life is cuddly, warm, prosperous, and carefree.

Yesterday, I felt like several balls were in the air at once. I had just gotten over being bed-bound for two days, and I had just survived the Let’s-See-All-Specialists-for-Myself-and-My-Children-All-in-the-First-Two-Weeks-of-January stress that I put on myself. Yup, eye doctor, dental torture, mammography, child psychiatrist, child therapist, pediatrician, and a long line-up of other such Happy Copay Collectors. I was apparently fulfilling some kind of unrealistic New Year’s resolution to maintain the family health. It felt like penance more than anything else—although for what, I wasn’t quite sure.

I thought, finally waking well, that it could be that often-just-out-of-reach day of rest. I wrongly assumed, after a four-day weekend off from school, that my kids would be in their respective learning institutions, and me? I’d catch up on some things—although I’m not putting the Christmas decorations away yet. I’m not that ambitious, and after all, my daughter tells all her friends (and their moms) that I keep them up until Valentine’s Day, so why ruin that little rumor? That’s too hyperbolic to pass up! 🙂

But then, after completing some tasks and starting to bury myself under some nice flannel sheets for a half-hour snooze, 

the phone rang.

It was the middle school nurse. The Day of Peace and Catch-Up came crashing down. I had to pick up my sickie Little Chickie. (I knew she was really sick because she’s my best patient and one tough cookie.)

After settling down Chickie, I headed to the elementary school to help with math in my son’s class, but when I arrived, I saw that The Look That Rips My Heart in Two was on his face.

The one where he’s given up.

The one where he’s overwhelmed and tear-filled but hiding it because he has looked over his math sheet a gazillion times and doesn’t know how to start.

Dear ADHD: Some days I admire your amazingness, and I want your incredibly swift-moving mind. But today, you put that look of failure and disappointment on Little Man’s face, and I just want to bash your face in. Love, Not-Feelin-the-Love-for-You-Today-ADHD, Mom

I choked back that sick feeling and shushed that haunting voice…the one that whispered to me we were doing last year’s depressive spiraling all over again. I got a grip, pulled my big girl trousers (such an awesome, antiquated word!) on, and backed off. I helped other students in the room. I kept a distant eye on him, but I didn’t hover, and I didn’t display Mama Panic.

Awesome Teacher and I exchanged a knowing glance. She would catch me up later. It was okay. She’s got this.

Faith-tested? 

Yes, it’s very hard to understand the “whys” of the struggle and if it will ever end. I cried on the way home and had this conversation with My Very Best Friend:

“Jesus, You know how much I love him. How I want to help him.” And then I said: “You love him so much more! So much more. I know You do.”

And with that statement of faith came a peace that I cannot explain.

But I find that in these testing moments, declarations of faith in God release His work in our lives. 

He certainly doesn’t need our permission, but it’s like a big nod or “go-ahead” that we trust what He is already doing and about to do.

James 1:3, ESV, James, brother of Jesus, speaking

…for you know that the testing of your faith produces steadfastness.

The day didn’t end before a dog ate something she shouldn’t have and my oldest fell sick on the way home from karate. Some days just stink like a sewer. And this was my post on some social media platform (can’t even remember which one now) by the end of the day:

Daughter is sick, is vomiting, and son needs . Don’t we all some days ?

Okay, what happens when we’re frazzled?

When I’m frazzled, it usually means scrapping everything I had planned and begrudgingly accepting a rework when illness/crisis/advocacy can’t be put down. To me, not being able to do it all used to equate to feelings of failure. Ridiculous, right?

Dinner might not be made.
Deadlines may suffer.
I might not meet the needs of Children #1 and #2 as well as I would like to, since #3 needs my help right now.
The dogs may chew the couch or leave a little mess because they aren’t getting the usual dose of attention.
Dust might pitch more than a few tents on my furniture.
Permission slips might not be signed on time.
Tests might not be assisted in being studied for.
My spouse and I might be quick to quarrel.
I might rage at times about the feeling of lack of control a disorder or disease may bring.
Kids might go to bed after a cereal dinner in the clothes they wore to school.

These sound like silly standards, right? And yet, how many of us get derailed by not meeting them?

But I can’t do everything. And neither can you.

So, I ask God to help me do my best, but I try to keep in mind that:

The only one interested in me beating myself up is the liar to my soul.

It certainly isn’t God, even on the days I’m wondering why I fail to trust, why I slip into measuring myself by ridiculous standards, why I forget I’m only human and need His amazing grace to cover where I fall short.

Maybe you’re going through something significantly tougher than what I describe here in my own personal anguish about my son. Jesus’s hand is warm whenever we remember to grab it. I’m squeezing it tightly. You can too.

He never leaves us. And He holds up what we cannot carry when we ask Him.

Deuteronomy 31:6, ESV, Moses writing

Be strong and courageous. Do not fear or be in dread of them, for it is the LORD your God who goes with you. He will not leave you or forsake you.

More anecdotal stories about an everyday relationship with God can be found in Not Just on Sundays: Seeking God’s Purpose in Each New Day (includes Book Club Discussion Questions).
 

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An ADHD Child and His Not-a-Morning-Person Parent

An ADHD Child and His Not-a-Morning-Person Parent
“Hello. My name is Bonnie, and I am not a morning person….Oh, and I have an ADHD child.”

Notice which order I put those in?

I didn’t define myself by my atypical child.

I took ownership of my own issue. = First step to getting honest and dealing with the core issue: me, not my son with ADHD. (For more on my family’s struggles to make sense of ADHD, refer to the section of blogs dedicated to this subject matter and scroll through to see if anything interests you. My Reading List page also has a list of books that I found helpful.)

This blog is about the little morning explosions that happen when you take a very exuberant ADHD child straight out of bed in the morning and combine that with a sleepy mom who hasn’t had her coffee yet and barely got the first two kids out the door on their earlier buses. The Not-a-Morning-Person Mom. That one.

And it’s also about why I’m the one who has to change.

My almost-nine-year-old Tigger bounces out of bed like a ping pong ball shooting aimlessly around to eventually make it into the right slot—except that, in his head, he isn’t aimless. He’s accomplishing (or attempting to) about 12 things and processing many new ideas at once.

And…he’s eager to share them.

At 7 AM.

Contrast that with my sleepy mind that floated through the past 40 minutes getting the secondary school kids in my house out the door, and I’m still trying to retrieve the thought as to whether or not I packed both of those lunches, and did I tell them I wouldn’t be here right when they got home today?

I might even be thinking about the laundry. The pile of dishes I left last night. The fact I still have yet another lunch and snack to pack. And have I even stopped to use the bathroom this morning?

Is the coffee machine on? Did anyone turn it on yet?

While I’m still on Thought One and a Half, along comes my delightful, hyper, mostly happy youngest son who wants to share every thought in his head.

Right now.

Before coffee.

And I’m an introvert who not only hates morning but thrives on quiet in order to function and process.

“Oh, God, this is where I always feel like I fail.”

And I can get all grumbly, whiny, snappy, snarly, and inward right now. I can certainly get my selfish on. And I regularly do. But his disorder is here to stay. He can’t wish it away. He can “work on” coping skills and body regulation,

but he can’t stop having ADHD.

But I can find ways not to be grumbly, Not-a-Morning-Person, impatient Mom. I can go to bed and get up earlier. Start the coffee sooner. I can ask God to help me handle the bounce of life, energy, and mind from 7 AM until school drop-off. I have the warm hand of Jesus to hold. I can consult Him. I do not have to fail if I ask for His help. The thing is: I will fail if I don’t. I might stumble along and get a few things right now and again, but without the faith that God is carrying us both through these moments without wounds and fallout, I will not be whom I need to be for my son.

Since I pretty much analogize in coffee in my sleep, I will now share one here. (Aren’t you glad I don’t express these analogies in every blog?–wink!) I was thinking that my Little Man is like the air bubbles being blasted into the milk to make a nice frothy topper to the espresso drink. He comes in with full force and makes something flat and boring like milk burst into foamy, airy bubbles that soar above the dark espresso.

I’m the dark espresso…melancholic and weary, heavy and pensive in the morning, and in comes Mr. Bubbles of Life to make the drink more interesting, more varied, lighter. I am the strength under the foam, perhaps, but my strength can either encourage and support that lovely foam, or I can flatten it back to ordinary hot milk, with no vim and vigor—How boring!

My words and my attitude are choices. I can choose to see him as a complement to my personality and embrace the gift of us blended together in the wee, challenging hours of the morning, or I can squash his spirit, his mind, his heart.

It helps to get honest. I hope, if you have similar struggles as a parent (with either typical or atypical children), that you can feel some camaraderie in the struggle in my “get real” moment. I find that being honest about the journey brings me fresh perspective and offers hope that I can do better—not perfect, but better.

I want to “delight in blessing” every chance that I get. I want to “spring forth fresh water” and not muddy it up with my own salty murkiness.

How about you? How do you cope with these struggles? I’d love to hear from you.

James 3:9-12, James, brother of Jesus speaking, ESV

With it [tongue] we bless our Lord and Father, and with it we curse people who are made in the likeness of God. From the same mouth come blessing and cursing. My brothers, these things ought not to be so. Does a spring pour forth from the same opening both fresh and salt water? Can a fig tree, my brothers, bear olives, or a grapevine produce figs? Neither can a salt pond yield fresh water.

Psalm 109:17-18, David (not yet king) speaking, ESV

He loved to curse; let curses come upon him!
He did not delight in blessing; may it be far from him!
He clothed himself with cursing as his coat;
may it soak into his body like water,
like oil into his bones!

 

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Goodbye, Monkey Box, and Goodbye, Hoarding!

IMG_6605 IMG_6607

Wow. This is a big day. If you are or live with someone with hoarding, collecting, or obsessive-compulsive disorder (OCD) tendencies, you will appreciate this. I asked my little hoarder if we could please get rid of this “monkey box” (which is referenced in Not Just on Sundays: Seeking God’s Purpose in Each New Day at the very end of the section on ADHD, so it’s special to me too) today because we needed to clear out some things. He didn’t deliberate, perseverate, complain, or bargain. He just. Let. Go. “Okay!” HUGE VICTORY over here! Thank You, God! We are making progress. (We are photo documenting so we can purge in freedom.)

I have Little Man home sick with me for the fourth day in a row. He found something on Cartoon Network, and I was going to finish some expense reports (yawn), but then Little Man rediscovered his love for his NERF gun and wanted to build some structures with Magna-Tiles® and knock them down in his room. I’m good with that. So, as he headed up to pursue that for a while, he said these magic words: “Mom, I want to play in my room, but it’s too cluttered.”

WHAT?

Okay, first step to healing is admitting there is a problem. Well done, Little Man.

So, then I dropped the expense report and went upstairs with him, asking: “How would you like me to help you de-clutter your room?” And he told me exactly what he wanted moved out of the way.

More progress. He had the executive functioning skill to know where things needed tidying.

And then I saw it: The monkey box. The one that Chickie (his big sister) helped him make one cold, winter day when the rest of us were outside shoveling 20 inches of snow. She helped him plan, execute, and clean up this project. At the time, monkeys were the latest obsession, and we decided art would be more therapeutic and cheaper than allowing the pile-up of ten different species of monkey in plush form playing zoo in his toy hammock.

It’s been a journey realizing that we have more than just a collector in our house. I can actually measure his anxiety levels based on how strongly he fights throwing something out or giving it away. Over the years, we have hoarded pirate toys (that part is my fault, as discussed in “The Pirate Who Saves Good People“), superheroes, Rescue Heroes, Pokémon toys, art projects, drawings, stuffed animals (particularly bats), etc. I recently learned from his child therapist that I need to stop letting him collect so obsessively. It’s not that we spend a lot or even on the spot. We make him wait for a special occasion and save up his money. But it’s apparently allowing him to order his world around things he can control, and it’s spinning his thoughts into perseveration—a no-no for OCD folks. So, we are learning to limit our collections, expand our interests, and purge our toy and art closets. I love this because we can all think more clearly when we clear our personal space, rooms, desk, and environment.

Anyway, I took a minute to ask him if we could get rid of the monkey box. I held my breath, completely prepared for the buckle-down, inflexible, anxious response. The past few days his mind had swirled about tornadoes and other such concerns (even though they rarely happen here in New England). He had fallen ill with a fever, and I think that all kicked in the anxiety this week. I’m learning to anticipate the triggers and ride the wave. So, I just about danced out of the room when he told me: “Okay, sure.” There wasn’t much of a pause, no second-guessing, no take-backs, no decision remorse. He was busy with NERF target creation. Beautiful!

I grabbed that lovely box and ran out of the room, with the few recyclables inside of it (yes, he hoards those too…right out of my recycle bin), not looking back. I even tested the waters by having him walk by it in the kitchen before I had a chance to bury it in Big Bad Recycling Tote outside into which no eight year old would care to dive. He walked by it a trip or two.

Still no comment.

So I finally took it out.

I’m not sure why I tempted him. I guess I wanted to know how far we had progressed, and I was willing to face the fallout.

Maybe I’ve progressed too.

Matthew 6:19-23, Jesus speaking, ESV
“Do not lay up for yourselves treasures on earth, where moth and rust destroy and where thieves break in and steal, but lay up for yourselves treasures in heaven, where neither moth nor rust destroys and where thieves do not break in and steal. For where your treasure is, there your heart will be also. The eye is the lamp of the body. So, if your eye is healthy, your whole body will be full of light, but if your eye is bad, your whole body will be full of darkness. If then the light in you is darkness, how great is the darkness!”

Most days, I strive to give him a choice of what to purge. That is empowering and teaches him how to manage the clutter independently. I’ll admit that on school days when I’m in a spring cleaning frenzy, I will toss some artwork and no-longer-touched projects out without permission. Most of the time, those don’t get asked about. Toys, on the other hand, do (reference “Dolly in a Stinky Sack of Potatoes” in Not Just on Sundays: Seeking God’s Purpose in Each New Day). Today we celebrate freedom, decreased anxiety, and getting healthier. Monkey boxes have their purposes. This one definitely saw him through a tough time, as did Chickie, when he was climbing his way out of a depressive episode.

But like anything else, we can’t “lay treasures up for ourselves” and think they help us control life. They serve a purpose, and most times, we move on—or we should. Holding onto our clutter makes us and everyone else around us anxious. It reflects our inner turmoil and our sometimes desperate grasp for control. It becomes a crutch when we lean on it too much. If we cannot part with something, it keeps our focus from being clear and on what can really be trusted.

For our family, that is our Father in heaven. As Jesus described in the Gospel of Matthew, our stored-up treasure reflects our heart, and what we see with our eye (the “lamp of the body”) can either shine light and clarity or cloud our thinking and ability to see. He is referring here to sin, but I think the analogy also works well for anything we are cluttering our lives with that we mistakenly feel we can’t part with.

Today was a victory. I’m so proud of Little Man. Each step toward not being controlled by or trying to control and hold onto things is a step toward the amazing freedom Christ bought for us when hanging on that cross, dying, and rising again. Little Man is already free. He just needs to learn to see those chains as gone as they really are.

We’ll get there.

By the way, I came downstairs and decided to make pumpkin muffins instead. Expense report can wait. 🙂

This was shared at Grace & Truth.

 

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Anxiety Volcanoes: Typical Expectations on Atypical Children [Excerpt]

Anxiety Volcanoes

Today’s blog is an excerpt from the recently published Not Just on Sundays (giveaway below–hurry, ends March 25, 2015!). It’s about what ADHD/ADD children may think about/hear/feel when different adults are making a lot of noise about how they should behave and act when they are struggling to regulate their bodies and minds. I believe it relates, in pieces, to children with autism spectrum disorders as well—and children with anxiety disorders, often a combo meal with ADHD/ADD. Anxiety is already present in these kids, but this blog—this very short snippet just skimming the surface—is specifically about the anxiety produced by typical expectations on an atypical child.

Thankfully, we are in a much better place with my son right now. This was written at the beginning of 2014. But I go back to my journaled thoughts very often to try to “walk in his shoes” and never forget the perspective and tiny voice inside a child who can’t quite express all of these things yet but so desperately needs the adults in his life to understand.

—————————

I debated adding our ADHD/anxiety/OCD journey to the book. It’s a footnote to the anxiety section, but to show how we walk through these trials and find the other side—or often learn to wait in the valley for another side to come into view—real-life examples from my life are needed. Being bare-naked-vulnerable for myself is one thing; my child is completely another. But people need to know how we walk our children through these challenges. I have heroes who went ahead of me in this. I know how badly we all need to walk this journey together.

If you have a child on the autism spectrum, a child with mental health struggles like anxiety, or an ADHD child, this is for you. I pray that you will find something in it that ministers to your heart, encourages you to go on, but more than anything, points to my heavenly Father, the only One Who can sit with us in that place and bring sweet peace in the midst of seemingly endless storms.

I originally wrote this very sensitive blog to a limited number of trusted friends and family. I feel this is really important to understand. I’m only beginning to unlock it myself. This is what a child with ADD/ADHD hears every day of his or her life, from all of us: teachers, coaches, parents, etc. We’re mostly well-meaning, but we’re all completely guilty of it.

“Sit down, Joey. Stop talking, Joey. Joey, stay on task. Joey, are you cutting correctly? Joey, pack that backpack faster. Did you hear me, Joey? Joey, are you listening? Joey, stop tapping your pencil. This is time to be still, Joey. Joey, are you with us? Joey…Joey…Joey….Joey….”

I get it. I understand how and why it happens. I am guilty of it myself, but this is what my son feels, trapped inside a jail of anxiety about something he struggles to control and is developmentally too young to solve or even know what the adults are so frustrated with. Because my son is such an external processor, I have the benefit of hearing what is often in his head. I’m beginning to realize that it sounds like this:

“I need to worry if I did everything they just said. What did they just say again? I might not have done that. Oh, wait, maybe I did. Oh, I don’t know. I might be bad. They think I can’t listen. I didn’t mean to not do the first three instructions. Maybe I’m dumb. I don’t think I have a good memory. I don’t know how to sit still. Oh, she might be mad again. Should I put a bandaid on this cut? Wait, did she tell me to get my shirt on? But I need a bandaid on this cut. I’m so overwhelmed, I can’t stop crying, but that slows me down, and they think I’m being a baby when I cry.”

This morning, I chose to say this (next paragraph). I don’t know where it came from except God. He showed me a glimpse of what my son was feeling, and it felt incredibly heavy to carry around. He’s so worried about the simple tasks he can’t complete that he has retreated into a world where things can be better controlled. He is locked into this: “Did I wash my hands? I can control that. Maybe I washed my hands. Let me do it another time because I’m not sure. That way at least my hands are clean. I know I can do that. Maybe I touched a germ, so let me wash again” and other such small tortures.

It’s a prison of the mind, and I am committed to daily blessing and praying him into seeing that he doesn’t have to live this way.

Me as we waited for the bus:

“Little Man, you are amazing just the way God created you. I know you are told all day long to ‘stay still, listen, stop talking, don’t fidget, did you finish that worksheet, are your boots on, and do it faster,’ and that must be really, really hard. And that must make you feel like you don’t meet expectations a lot of the time. But you know what? You are a wonderful little boy with a big heart, and I would never think that you did wrong on purpose. People are trying to help you focus, but it sounds like a long day of demands, and I’m so very sorry. You go off today with the peace of God on you. You stop and quietly ask Him for help when you can’t please an adult. He knows how pure that heart is inside of you because He put it there, and He knows you are trying your best every day and that some days are very hard and you hurt big inside. I love you deeply, and you don’t need to worry all day long if you did everything right. As long as you try, I know you are doing your best work. I’m really proud of you. Don’t worry if you did everything right or in the right order. You don’t have to be perfect. I’m not perfect. I need God’s help too. Every day of my life. I am very proud of the wonderful son and child you are. Go in God’s peace, Son. I love you so much.”

And it could be that I wanted to see it. It certainly could be. But I felt his shoulders lighten a little. I felt something heavy blow off between us. I felt his painful guard relax. A tiny bit. For the first time in weeks, he let me quickly embrace him. He might have skipped once as he walked to the bus. And I came inside and wept because God showed me what he carries around inside, and it’s way too much for a child. Way too much. I hope my reflections somehow help those of you with children who struggle similarly. Thank you for reading.

[Nothing about this post is anti-medicine or anti-behavioral therapy in addition to prayer. We are taking steps ourselves to pursue the best course for our child. It was more or less to share our journey and to open up our adult minds as to what goes on inside the mind of a young child trying to deal with this. It’s also not a post soliciting help or sympathy. We are prayerfully taking our own steps. It’s a dialogue for parents on this road alongside us. You are not alone.]

Espressos of Faith has dedicated entire blog categories for more discussion on Anxiety/OCD/Depression and ADHD.

*This blog can also be found at Mom 2 Mom Monday Link-Up, Make a Difference Mondays Link-Up, and Simply Inspired Wednesdays Link-Up.

Great resources: Positively Atypical! and Dr. Hallowell

Goodreads Book Giveaway

Not Just on Sundays by Bonnie Lyn Smith

Not Just on Sundays

by Bonnie Lyn Smith

Giveaway ends March 25, 2015.

See the giveaway details
at Goodreads.

Enter to win

 

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Taking the Word “Limitation” out of Our Vocabulary

Taking the Word “Limitation” out of Our Vocabulary

The other day the sweet mother of one of my son’s friends told me after a playdate that my son has a real “calming/mellowing effect” on her son.

Um, what now?

This is my Hyper Tigger—the one with ADHD. “Calming,” did you say? Most days I do not feel calm in his presence. He bounces around and brings endless joy, but he isn’t exactly what I’d call

still

or

calm.

Surely she’s confusing which parent I am.

But that was my first mistake: thinking that my son couldn’t be strong in an area of weakness.

What looks like a limitation from one angle is usually a blessing from another. Why couldn’t he be soothing to someone else? Why does hyper have to define him 24/7?

Does it?

My second mistake was not believing her the first time. This is the second time she has told me that. I doubted my own son because of my own limited experience and the label put on him.

You know what I see in that? God working through our weaknesses. They don’t have to be limitations when we are willing to see the labels of man as just that: “labels.” I had new appreciation for my limited view into the future when really I have no clue what weaknesses will be used for good or become strengths over time.

Who is to say a socially awkward child doesn’t turn out to be an amazing therapist, minister, salesperson?

Do fine motor strength issues rule out a future in surgery or art?

Does a struggle to read in early intervention years mean someone can’t end up a teacher—or a writer?

What about a speech delay or impediment? Does that mean no public speaking?

My poor spelling child works harder than either of my other two kids. A love of reading would have helped, but this child didn’t read as easily. Because of hard work in this area, this one may surpass us all.

So it made me ask myself: Why do we stop ourselves in the middle of the road (where labels weigh us down), accept what is given, and not consider getting across it?

If my father had accepted the first prognosis from the first medical professional 34 years ago with his first cancer, he would have welcomed a death sentence: terminal. Um, he’s still here.

He decided to cross the road.

I am socially anxious and very inward. Some days I have to talk myself into leaving the house, and yet, when I am where God wants me to be, with the people He wants me to either learn from, receive from, or minister to, He makes it easy. Suddenly, I’m not such a buffoon. I have some right words to say. And I walk away knowing something more about Him and about what amazing paths I can travel down when I don’t stop right where someone told me I had to because I wasn’t “strong” in that area.

I challenge us all to find where we have believed a label as a permanent mark on our lives, where we have sat in the middle of the road accepting our plot.

I’d like to suggest that permanent mark should be considered more of a washable marker. It’s movable, sometimes—but not always removable. It doesn’t have to stay there. Sometimes we can push it further. Sometimes we can push it entirely off.

Does that mean we will change every diagnosis? Every handicap? Every disease?

Not necessarily, but it does mean we look beyond it and see where we can act in spite of what was spoken to us. I have a dear friend fighting to raise money and awareness for her Type 1 Diabetic child. Do you think as a mother she is accepting that diagnosis and just rolling over and taking it? No. No, she is not. Another friend was told her child would not likely walk. She didn’t accept that. Friends beating up cancer with everything in them. Friends hoping and praying their “on the spectrum” children become functional adults, able to hold jobs and maybe even have families someday. A severely autistic child who writes amazing poetry. Folks climbing out of addiction and hoping their day count of sobriety continues to climb.

For me, because of my faith, I call in the impossible because I’ve seen too many very real, modern day miracles to think God can’t and doesn’t still move in our lives when we ask.

For me, limitations are just invitations to ask Him to wow the world with what He can do.

I realize I’m not the first to write on this. I also know some of us are sitting in the middle of the road still, heavy and weighted down, not sure how to get up and move on. I also know not everyone reading this shares my faith in Christ.

But can we agree to get out of the road where circumstances, prognoses, medical professionals, special education staff, teachers, family members, tests, etc., dropped some kind of definitive statement on us, and can we start walking to the other side?

Because when we stay stuck in those labels, those definitions, we end up getting hit by everything else coming down that road. We get beat up, discouraged, worn down, until hope is roadkill flattened in front of us, and we’re left to peel it off the pavement just to get some of it back.

When I am in that place, I want people to hold my hand and remind me to finish crossing, to be bold, to hold on, to pray for promise and hope. And I want to be the warm hand helping others look beyond these things.

Why can’t my Tigger nurture, calm, and settle another little soul his age? Why is it so hard to believe he is defined by far more than ADHD, and why wouldn’t God want to show the world His glory by working through how we see Little Man and showing us what is possible if only we’d believe?

I don’t know, but this one innocent, yet powerful statement from this sweet mother taught me everything I need to know to get out of the road right now. Will you come with me? It’s much better on the other side, where hope and possibility reside.

Luke 1:36-37, an angel of the Lord talking to Mary, telling her she would have a son, ESV
“And behold, your relative Elizabeth in her old age has also conceived a son, and this is the sixth month with her who was called barren. For nothing will be impossible with God.”

Luke 18:27, Jesus speaking, ESV
But he said, “What is impossible with man is possible with God.”

2 Corinthians 12:9-10, Apostle Paul speaking, ESV
But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me. For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions, and calamities. For when I am weak, then I am strong.

 

 

 

 

 

 

 
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Posted by on November 4, 2014 in ADHD, Renewing Our Minds

 

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A Letter to Parent Volunteers in Elementary School Classrooms

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The following blog is written the way that it is, in letter format, because of a wise friend who saw my Mama Pain in a brief vent on social media today and encouraged me to write something that informs parents from the perspective of a parent with a child who struggles. He is often the recipient of harsh treatment from perhaps well-intended parent volunteers. Sometimes, this has happened right in front of me at volunteer times in the classroom, and sometimes, my child tells me days later, in tears. He is sensitive, but not overly so. He knows not everyone will jive with everyone else. In his short school tenure, at age 8, he has had teachers he really clicked with and those he hasn’t. He knows not every person will really try to know him, and that’s okay. That’s true of life.

But I have been growing very weary of parent volunteers going in to a lower elementary school classroom lacking humor, patience, and compassion, especially for kids with struggles or who think outside the box, and “playing uptight parent” to someone else’s kid. I know the lower elementary school teachers benefit from rotations of parent help for reading times, math games, and research, and we have wonderful staff, but if a parent is going in to exert a power trip over little kids, perhaps they should not volunteer. I volunteer to help children and teachers but also now to babysit out-of-line parents. Happens every year.

Not on my watch.

In my opinion, being that harsh to a child with or without struggles (not their own child…mine or someone else’s) is without excuse. The school environment should be a safe place for little hearts.

Some of the most cutting, sharpest comments are made to my child by parent volunteers. Little Man sat at my breakfast table this morning in tears thinking he had done something wrong when he was being creative. (I cleared up the details of what was said, why, and if there was misbehavior or teacher intervention. There wasn’t.) His exact words: “She [snappy parent volunteer] connected with all of the other kids there but me. She didn’t make a good connection to me.” This was after letting me know what she did say to him. I spent part of the morning praying down my mother rage. I don’t even know her or her name.

It motivated me to write this. Thank you for reading it.

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Dear Elementary School Parent Volunteer:

There are a few things I would really like us all to know, to think about, to swirl around in our minds and hearts before we enter the classroom to help with math games, reading centers, research units. Going to volunteer training is not enough. We must go in deeply, firmly rooted in an understanding that we are not the parents of every child in that classroom. We can’t possibly know each situation, each struggle, each backstory, each tender heart. We do not know what each child faced that morning over his/her bowl of cereal.

  • He could have heard his parents threaten each other with divorce for the tenth time this week.
  • She could have heard that anger rising in the voice of a violent family member or encountered the malaise of a depressed or ill parent.
  • He could have had his fifth meltdown because the tag on the neckline of his shirt was irritating him.
  • She could have had a panic attack about the small oral presentation she had to give today for her book project.
  • He could have washed his hands 12 times before, during, and after getting dressed because he was worried about germs.
  • She could have struggled to get her math facts the night before, and everyone else in the class seems to catch on more quickly.
  • He could have struggled to write neatly and color in the lines because of a fine motor weakness.
  • She might not be able to focus because something happened on the bus on the way in that was too loud for her, too much for her to process at once, and she’s still in the middle of processing it.

Dear Parents: We don’t know whom and what we are walking into when we go in to help. We are not experts on the issues of all children. Let’s face it: Some days we don’t always even know the “right” approach for our own. We do not have full perspective.

We are not there to parent other parents’ children. The class discipline is really up to the teacher’s discretion and discernment.

Even if some of us have degrees in special education, social work, or child/family therapy, if we do not live with a child with those challenges, we only know the outside story. We do not know the inside one. We do not know what it is like to work around the challenges and struggles, big or small, typical or atypical, on a daily basis of those specific kids.

We also do not know what it is like to be a child with adults towering over him/her trying to be part of a “solution,” one that is assumed, while the child is silently trying to figure out where and why he/she is failing expectation.

Here are some things we need to remember: Everyone struggles with something. In any home, there may be:

  • academic super-achievers who are a little immature or socially behind
  • dyslexia and other learning disorders
  • developmental delays
  • autism spectrum
  • ADHD/ADD
  • anxiety/depression (yes, young children can legitimately struggle with these for a host of different reasons)
  • speech delays
  • processing disorders
  • a combo meal of several of these

And the list goes on.

Really, do any of us know what those all look like in individual children and families? Are we reading IEPs before we go into the classroom as parent volunteers?

Of course not.

So we need to allow for the fact some kids are going to be slower to process something, have trouble focusing, melt down emotionally more than another kid. We don’t have access to this information, but we absolutely should go into the classroom to volunteer wearing:

  • grace
  • patience
  • compassion
  • understanding
  • kindness

I’ve had a parent hover over my child who couldn’t complete a drawing/coloring task anywhere near the time other kids could. She kept on him as if he were her personal “fix-it” project for the day.

I wanted to say to her:

“That is not why you are in the classroom today. You need to let the school specialists help my child in that way. Your job is to encourage him, perhaps kindly redirect, but to help him at whatever point he is at. It is not to tell him over and over again he isn’t as quick as everyone else and to hurry up and catch up, and why is he coloring like that?

Your job is to keep him on task, to make sure everyone is including each other, to build these kids up, to make sure they understand the instructions.

Your job isn’t to roll your eyes when one kid is fixated on dinosaur facts. Or another talks louder than others.

Can you see inside his ear? Do you know if he has a hearing problem or processing disorder?”

No, we just work around whatever we find in the classroom. We don’t try to fix, control, or judge it.

One day, my child could not move beyond the glue on the end of his fingers that came off of a Valentine someone gave him. He thought it was a germ. A volunteer yelling at him to hurry up and finish his own Valentine wasn’t going to help him stop fixating.

Again, the voice in my head had an internal conversation with her:

“Because you don’t live with him, you don’t know that he is having a massive, internal panic attack, one that, not being visible, is almost more crippling. It’s not your fault you can’t see it, but please approach him with kindness and not judgment. He is my ‘project.’ He was given to me. Along with specialized staff, I’ll take it from here. Please know your part is just to do classroom tasks and not to make everyone fit into the same size box of expectation.”

To be fair, I see so many parent volunteers do it well. Because they bring grace in with them—and the perspective that they do not “know it all” and can only come at it from their own limited experience. Just like mine is limited. We each come in with only one piece of the puzzle.

Like all of the adults in the school building directing small kids, volunteers make an impact and leave an imprint. My son often receives the message that (his exact words): “She connected with all of the other kids there but me. She didn’t make a good connection to me.” Young kids are smart, intuitive, and sensitive. They know when adults don’t like them or are irritated.

For 45 minutes, can we please just walk in, turning off the following buttons in our minds and hearts (we all have them):

Judgment
Diagnosing
Criticism
Impatience

Can we please go, approaching tender hearts as if we didn’t have all the answers yet?

Because none of us do—even in our own homes and situations.

Let’s take the burden off ourselves and let the staff “figure out” the kids. Some kids might not read as fluently as the rest of the class or color inside the lines. Let’s meet them right where they are and just grace them to the next logical step, or even just help sustain the learning of the moment.

Today might be a rough day. A child may have already been necessarily corrected by several staff at this point. He/she might be weary, frustrated, or sad.

If you have three to five adults (parents, teacher, principal, special services teachers, specials teachers) in your life every day that you expect to be leading you, having several more in your face—some outright strangers—can add stress when you’re 5, 7, 9.

Let’s go in and be stress-reducers, speaking in soft tones.

Let’s remember how our kids are all still works-in-progress—how we all are.

Sincerely,

The Concerned Parent of a Child Who Struggles

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In the middle of writing Not Just on Sundays, I heard the squeaky, growing voice of my youngest child begging to be heard, and a children’s book deposited itself into my heart; I asked all three of my children to collaborate with me. It attempts to shed light on how it feels to be a child when adults aren’t really listening to them. Why Don’t Grow-Ups Listen? should be out in 2015/16.

*This blog can also be found at Mom 2 Mom Monday Link-Up #25, Make a Difference Mondays, Pick Your Pin TuesdayFaith-Filled Fridaysand Grace & Truth Link-Up.

 

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Why I Don’t Mind That You Know We Go to Family Therapy

Why I Don't Mind That You KnowOne of my personal goals in life is to take the stigma and shame off mental health issues and to open wide the floodgates so that people who struggle (or their family members/friends) will not shy away from walking through doors of help. I want to write about the things we all desperately want to know so we don’t feel alone, but maybe we just aren’t ready to be public about. Maybe we are intensely private in general, or perhaps we just can’t let this part of our lives out into the light yet.

That’s okay. I get it. I’ve been there. I felt deep shame for a while because I didn’t know how to tell people I wasn’t well, find the right words, or even understand how to get them to listen. It’s only been six years for me. The feeling is still fresh. I get it.

Today I want to open up conversation about family therapy because even if you go, you might not write about it. Or maybe you’re considering it but not sure what it’s about. Maybe it seems overwhelming or intimidating. Obviously, I will not divulge personal details here that dishonor anyone in my family or step over any privacy/professional lines. This is about the overall experience.

It’s to broaden the dialogue.

To make people feel less alone.

To reach into dark places and shine some light.

[Disclaimer: I have permission from my family members to share this. We remain committed to sharing the journey together with the goal of bringing hope and help to others walking a similar path. Ours is neither a worst-case nor a best-case scenario. It’s simply our scenario.]

Read the rest of this entry »

 
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Posted by on October 9, 2014 in ADHD, Anxiety/OCD/Depression

 

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When People Don’t Need to Hear About Your Honors Student

When People Don't Need to Hear About Your Honors Student

I seem to always be behind a car with a “My Kid Is an Honor Student at Blah-Blah-Blah School” sticker.

Is that wrong? No.

Should we celebrate and let our kids know we are proud of them? Yes.

Is it any different than a sticker with a dancer, lacrosse player, football player, cheerleader, or martial artist? Well, that depends.

It’s not really about the sticker.

It’s about knowing our audience. It’s okay to share our joys, delights, pride, and happiness about our kids’ achievements, successes, and talents with close friends and family who also enjoy seeing our children thrive, but I firmly believe we need to be sensitive with whom we share those things.

I have honors students in my house, too. I fully understand the enthusiasm. I occasionally post about one of my kids’ successes or achievements on my private wall of social media. I also enjoy reading about the amazing talents among my extended family and friends. It’s fun to follow that. I also love seeing people rise above struggles, challenges, and handicaps. I’m not at all condemning us for encouraging our kids, celebrating, or even being happy for them.

The following scenarios are fictional and do not reflect my not-at-all-perfect life. They are hypothetical and are not based on real people or situations in my life. But I think it’s helpful to drive home a point. I hope you can hang in there with me… Read the rest of this entry »

 
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Posted by on September 22, 2014 in ADHD, Grace in Big Gulps, Tweens/Children

 

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What’s Really Behind the Things That Drive Us Nuts? [Excerpt]

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Today, Espressos of Faith offers a fifth excerpt from Not Just on Sundays, due out this month. The book often features the smaller moments of life and what they can teach us if we zoom in to see what might really be going on—how God can be showing us something huge in the ordinary of the day.

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Not giving a creative person the time, space, and materials to do his “art” is like slowly starving him from the inside out. I am trying to find that balance, and I am learning from my youngest guy. His hands are not the strongest, and his fine motor skills need to develop and be refined, but he sees himself as an artist as he shapes Amazon.com boxes with endless materials to create amazing treasures. I have to remember that although all of the assorted scraps I call “trash” (like Dum Dum wrappers) get under my skin after a while—when he stocks them up like a squirrel—he sees future masterpieces. What I like to think I see in words, he sees in everyday stuff around him.

Okay, Little Man, if you need a card table in the family room with endless junk on it and a used mailing box—and that keeps you from begging for more screen time—then have at it, Child! Can’t wait to see what you make. Maybe we should sell a few of those items at our lemonade stand this summer to afford storage for your recycling, er, I mean art studio.

That was a lovely story, wasn’t it?

I wish I could say my perspective looks that delightful and calm all of the time.

It doesn’t.

I occasionally rage. But it is an area I am turning over to God so He can help me find a way to bless instead of speak labels onto my children.

I’m not a big fan of any label. The label “ADHD” may help a child get the help he needs on an IEP, and within the context of a school system, that may be entirely appropriate and helpful, but I do not want to look at any of my children as limited by their weaknesses.

I don’t want to say: “You forever will have attention issues.”

I want to say: “It will be awesome to see how God uses all that phenomenal energy for creative works to bring Him honor someday and help people!”

But this takes daily praying through what may perplex me or drive me nuts and asking God for words that cancel out the:

“You never wills,”
“You always,” 
“You have to stop XYZ-ings”

that our kids hear every day.

Some of it is necessary. A lot of it is not. Here’s what it looks like when I ask my Father in heaven to give me words. (I won’t taint your minds with what it looks and sounds like when I don’t. You’re welcome.)

I was challenged this past weekend to speak to my kids more about their God-given gifts and abilities, how the Lord is shaping their hearts, and whom I see them growing to be. It builds on some of what I have already been doing, but I love saying:

“______, you have been given a tremendous heart for others, tender toward people and all of God’s creatures. You are sensitive to the hurts in others and respond with great compassion.”

Or “______, you have been given a warrior spirit to stand up for injustice and speak His Truth when He calls you to it.”

Or “________, you have a kind, gentle heart that speaks quiet strength, safety, and protection. You lead softly, with delightful humor and deep thought. You know His Word inside and out, and now may it go from your head to soak deeply into your heart.”

And, really, what’s actually behind the things that get under our skin is simply that: our own skin. We are just as annoying and frustrating at times. But we’re adults and have more authority to misuse or mishandle.

Or to bless.

James 3:9-12, James, brother of Jesus, speaking

With the tongue we praise our Lord and Father, and with it we curse men, who have been made in God’s likeness. Out of the same mouth come praise and cursing. My brothers, this should not be. Can both fresh water and salt water flow from the same spring? My brothers, can a fig tree bear olives, or a grapevine bear figs? Neither can a salt spring produce fresh water.

 

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Tracking with the ADHD Mind: Journey into Incredibleness

Tracking with the ADHD MindI was in the car with my 8 year old son this morning on the way to drop him to school. In the short 10 minute ride, his ADHD mind took me from perfect hairstyles for his waves and curls to new recipes he’d like to try when he opens his own “kitchen” next summer. He also talked about different ways he could get his friends interested in his latest toy subject. He had a plan for so many things.

But his plans were happening simultaneously. It was multitasking on a multi-core microprocessor level. He went so quickly I thought he would heat up and shut down, like my old Mac. I kept waiting for the abrupt blank screen.

And on these drives we have, I admittedly sometimes struggle with it. When I’m in rush hour traffic getting him somewhere, I don’t always enjoy hearing how Obama could take more authority to help people in XYZ ways, or we could get the toilet to flush more efficiently this way, or what do I think if he varies the current Pokémon toys just slightly to get a different customer base when he runs his own toy factory someday. And how about that ant poison recipe he wrote down in secret and made me promise to keep his formula safe? I can often be heard under my breath in a soft whisper: “Oh, God, please make it stop for second so I can drive. I can’t process this right now.”

But Little Man can.

He hears all of the signals of information at once, and from them, he brainstorms nonstop how to make the world a better place.

So, today, when I had a more leisurely drive, I listened better. I needed a full shot of espresso to keep up with him, but it fascinated me. And I suddenly didn’t want to stop him. I didn’t want to tune to just one channel of that amazing mind. I was greedy. I wanted all of his thoughts at once. I wanted him all ADHD-ed out, the pure, original him. For a few minutes, I think I was actually jealous—or at least deeply admiring.

I realize ADHD comes with its struggles and companion diagnoses. I know OCD, anxiety, depression, and learning disabilities often hitch a ride with these phenomenal minds. We have our own struggles with the combo meal served up frequently with ADHD in our house, and they are not easy. If I’m honest, of course, I don’t love those obsessive, wigged-out moments. Not at all.

And I know the level of creativity and intellect can vary with each individual.

I also fully understand why teaching these jet engines can have its challenges, and I support the medication and strategies offered by specialists in the field, when used appropriately.

But I want to listen more when he rattles on without pause. I want to be his stenographer. I am curious which ones, out of the multiple scenarios, solutions, and thought processes going on in his head—if we write them down—stand a chance of being acted upon someday.

Some see it as “mind clutter.” I see it as him hearing the many ideas God gives him at full speed ahead. And I see him racing after them, with great joy at hearing all of that at once.

But the joy stops when he sits down to focus on math problems at a desk for solid amounts of time, or when there is a school assembly he has to be still for. At those moments, he needs to hear one frequency only. And that is very difficult.

But there is a very happy, Tigger-y* bounce when he can be fully himself and run wild after the wind, with God whispering gusts of incredibleness straight through his mind. And his mind can keep up with it all, unlike mine, which would need a butterfly net to hold on to all of those thoughts at once.

And in the moments when we can, I choose joy for him. His jumble of thoughts propels him forward; it excites him about life and everything there is to discover and create. To take that from him all of the time is to erase shades of Little Man—and I love him bursting forth in full color.

For more on viewing ADHD as a blessing in disguise, refer to:

Driven to Distraction: Recognizing and Coping with Attention Deficit Disorder from Childhood through Adulthood by Edward M. Hallowell and John J. Ratey
http://www.drhallowell.com
http://www.johnratey.com

Why A.D.H.D. Doesn’t Mean Disaster by Dennis Swanberg, Diane Passno, and Walter L. Larimore
http://www.dennisswanberg.com
http://drwalt.com

Our personal journey through ADHD, OCD, depression, and anxiety can be read about more in Not Just on Sundays: Seeking God’s Purpose in Each New Day.

*The Tigger tiger of Winnie the Pooh fame

**This blog has been shared at Pick Your Pin TuesdayA Little R&R Wednesdays, RaRa Link-UpWomen With Intention Wednesdays, Me, Coffee & Jesusand Coffee & Conversation.

 
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Posted by on September 4, 2014 in ADHD, Anxiety/OCD/Depression

 

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