RSS

Monthly Archives: February 2018

Loving Little Man

Loving Little ManFear is a funny thing—and so are the emotions of a parent watching a child suffer.

I thought I had all the wonderful ingredients to be a special needs parent, as if it was some kind of recipe God puts together. Actually, I think that it is. You see, I was born a warrior. I have always been an advocate. I have never found myself to be fearful when confronting authority in the name of justice. When I see unfairness, my heart always screams, and my mouth is soon to follow.

On the flip side, I am deeply compassionate. That’s probably why I feel stirred to speak up for the downcast. I was one of the few students in junior high school who made a point to include and interact with a fellow youth group student with mental retardation. I saw her. I wanted her to know she mattered.

But then I had my own special needs child.

On the precipice of receiving diagnoses after reaching a significant crisis point, there are two choices in our flesh: a spiral into fear or a rapid bearing of fangs. In the beginning, separating those emotions is impossible. Wrapped up in all the pain are fierce anger, a sense of desperate protection, scary projections of what the future holds, and an overall desire to howl at the moon. When our children are touched so directly by the fall from perfection in the Garden of Eden, there is something so base, so animal, within us that wants to sit at the gate and beg the angel to let us back in the Garden and slam the doors shut again.

Within four months of his birth, my fair-skinned, redheaded little boy (Little Man) Read the rest of this entry »

 

Tags: , , , , , , , , , , , , , , , , , , , , , ,

Of Bats and Brides: Who’s Your Valentine?

Of Bats and Brides- Who's Your ValentineTwo years ago, I thought I could pick up some easy address-and-sticker valentines for my last elementary school child, Little Man, to bring in for 19 other happy third graders. Then he casually mentioned finding extra construction paper, and I thought: “Oh, yey! He’s making them this year!”

Settling into the lovely thought of slapping some supplies and the class list on the table, my lofty dreams of a Sunday afternoon nap were abruptly interrupted with this declaration:

“Let’s make valentines about bats! We can give them each a fact they might not know.”

Okay, yeah, my enthusiasm completely missing, I felt that Mother Guilt twang—you know, the one that comes along and reminds you there aren’t as many photos on the walls of Child Number 3. Before my mouth fully checked in with my mind, I agreed to do this, and several bat web sites later, we had more than enough encyclopedic information to delight any budding chiropterologist. Really, National Geographic Kids should be calling me any time now offering me a regular contributor gig [smile].

I started thinking about the great lengths Little Man and I went to in order to best represent his interests to the recipients and how we found the right pictures, communicated mild humor, chose words that sounded like something he would say, and offered some education along the way.

It was important to Little Man to represent himself honestly. He didn’t want to convey just any message. He wanted to remain true to himself.

When his classmates open that valentine, many of them will not even need to turn it over to see its sender. It will look and read so much like Little Man, that anyone who truly knows him, or is his daily companion, will recognize the author’s voice.

Valentine’s Day may be a loaded occasion for you. Maybe you have Read the rest of this entry »

 

Tags: , , , , , , , , , , , , , , , , , ,

Why I Left My Church One Easter

Why I Left My Church One Easter-3It took me more than five and a half years to write this story, the one where my heart left my church one Easter. And even now, I am fully aware of the following:

  • I left a building and a shepherd, not the people and not my true Shepherd. I still run a prayer group (going strong many years now) with wonderful women I met there. The Church, ultimately, is the Body of Christ, and I will never abandon her.

1 Corinthians 12:12-14, ESV
For just as the body is one and has many members, and all the members of the body, though many, are one body, so it is with Christ. For in one Spirit we were all baptized into one body–Jews or Greeks, slaves or free–and all were made to drink of one Spirit. For the body does not consist of one member but of many.

  • I still love the people who remain, and I am keenly aware that they have their reasons for finding something of value there. For a few years, I did as well.
  • None of this is to disrespect that particular church or shepherd. We are all God’s children.

But I believe this story has value. I hope you can have an open heart while reading it.

As Easter 2011 approached, I felt that sick feeling in my gut I had been feeling for years, really. Easter is a time to invite friends to church, to celebrate the resurrection of Christ, to spread love to a world that needs it (yes, we should be doing that all the time, but people tend to seek a church out for Christian holidays).

But I had a major problem:

I couldn’t picture wanting to invite anyone to my church.

In my mind at the time, right or wrong: If they were already broken, they could break more. If they needed Christ, they would only find Him being beaten on a cross.

They wouldn’t necessarily get the message that His resurrection brought grace.

I agree that it is very important we understand He took on our sin. Our sin and what should have been our judgment placed upon His body are realities we must never forget.

The judgment-only focus did not mix well with depression, anxiety, and abandonment already part of my history. Nor did it help a young mother longing to connect with a real, loving, compassionate God.

So, I knew it wasn’t a good sign when I begged my husband to go away that weekend with the kids. We could still attend church—just not our own. How sad is that? I’m not proud of that moment, but I needed the other half of the story. I needed grace. So to Burlington, VT, we went and worshipped and celebrated Easter with a lovely evangelical church there who took us in.

And that’s the day I knew I had to leave. Read the rest of this entry »

 

Tags: , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,