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Anxiety Volcanoes: Typical Expectations on Atypical Children [Excerpt]

Anxiety Volcanoes

Today’s blog is an excerpt from the recently published Not Just on Sundays (giveaway below–hurry, ends March 25, 2015!). It’s about what ADHD/ADD children may think about/hear/feel when different adults are making a lot of noise about how they should behave and act when they are struggling to regulate their bodies and minds. I believe it relates, in pieces, to children with autism spectrum disorders as well—and children with anxiety disorders, often a combo meal with ADHD/ADD. Anxiety is already present in these kids, but this blog—this very short snippet just skimming the surface—is specifically about the anxiety produced by typical expectations on an atypical child.

Thankfully, we are in a much better place with my son right now. This was written at the beginning of 2014. But I go back to my journaled thoughts very often to try to “walk in his shoes” and never forget the perspective and tiny voice inside a child who can’t quite express all of these things yet but so desperately needs the adults in his life to understand.

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I debated adding our ADHD/anxiety/OCD journey to the book. It’s a footnote to the anxiety section, but to show how we walk through these trials and find the other side—or often learn to wait in the valley for another side to come into view—real-life examples from my life are needed. Being bare-naked-vulnerable for myself is one thing; my child is completely another. But people need to know how we walk our children through these challenges. I have heroes who went ahead of me in this. I know how badly we all need to walk this journey together.

If you have a child on the autism spectrum, a child with mental health struggles like anxiety, or an ADHD child, this is for you. I pray that you will find something in it that ministers to your heart, encourages you to go on, but more than anything, points to my heavenly Father, the only One Who can sit with us in that place and bring sweet peace in the midst of seemingly endless storms.

I originally wrote this very sensitive blog to a limited number of trusted friends and family. I feel this is really important to understand. I’m only beginning to unlock it myself. This is what a child with ADD/ADHD hears every day of his or her life, from all of us: teachers, coaches, parents, etc. We’re mostly well-meaning, but we’re all completely guilty of it.

“Sit down, Joey. Stop talking, Joey. Joey, stay on task. Joey, are you cutting correctly? Joey, pack that backpack faster. Did you hear me, Joey? Joey, are you listening? Joey, stop tapping your pencil. This is time to be still, Joey. Joey, are you with us? Joey…Joey…Joey….Joey….”

I get it. I understand how and why it happens. I am guilty of it myself, but this is what my son feels, trapped inside a jail of anxiety about something he struggles to control and is developmentally too young to solve or even know what the adults are so frustrated with. Because my son is such an external processor, I have the benefit of hearing what is often in his head. I’m beginning to realize that it sounds like this:

“I need to worry if I did everything they just said. What did they just say again? I might not have done that. Oh, wait, maybe I did. Oh, I don’t know. I might be bad. They think I can’t listen. I didn’t mean to not do the first three instructions. Maybe I’m dumb. I don’t think I have a good memory. I don’t know how to sit still. Oh, she might be mad again. Should I put a bandaid on this cut? Wait, did she tell me to get my shirt on? But I need a bandaid on this cut. I’m so overwhelmed, I can’t stop crying, but that slows me down, and they think I’m being a baby when I cry.”

This morning, I chose to say this (next paragraph). I don’t know where it came from except God. He showed me a glimpse of what my son was feeling, and it felt incredibly heavy to carry around. He’s so worried about the simple tasks he can’t complete that he has retreated into a world where things can be better controlled. He is locked into this: “Did I wash my hands? I can control that. Maybe I washed my hands. Let me do it another time because I’m not sure. That way at least my hands are clean. I know I can do that. Maybe I touched a germ, so let me wash again” and other such small tortures.

It’s a prison of the mind, and I am committed to daily blessing and praying him into seeing that he doesn’t have to live this way.

Me as we waited for the bus:

“Little Man, you are amazing just the way God created you. I know you are told all day long to ‘stay still, listen, stop talking, don’t fidget, did you finish that worksheet, are your boots on, and do it faster,’ and that must be really, really hard. And that must make you feel like you don’t meet expectations a lot of the time. But you know what? You are a wonderful little boy with a big heart, and I would never think that you did wrong on purpose. People are trying to help you focus, but it sounds like a long day of demands, and I’m so very sorry. You go off today with the peace of God on you. You stop and quietly ask Him for help when you can’t please an adult. He knows how pure that heart is inside of you because He put it there, and He knows you are trying your best every day and that some days are very hard and you hurt big inside. I love you deeply, and you don’t need to worry all day long if you did everything right. As long as you try, I know you are doing your best work. I’m really proud of you. Don’t worry if you did everything right or in the right order. You don’t have to be perfect. I’m not perfect. I need God’s help too. Every day of my life. I am very proud of the wonderful son and child you are. Go in God’s peace, Son. I love you so much.”

And it could be that I wanted to see it. It certainly could be. But I felt his shoulders lighten a little. I felt something heavy blow off between us. I felt his painful guard relax. A tiny bit. For the first time in weeks, he let me quickly embrace him. He might have skipped once as he walked to the bus. And I came inside and wept because God showed me what he carries around inside, and it’s way too much for a child. Way too much. I hope my reflections somehow help those of you with children who struggle similarly. Thank you for reading.

[Nothing about this post is anti-medicine or anti-behavioral therapy in addition to prayer. We are taking steps ourselves to pursue the best course for our child. It was more or less to share our journey and to open up our adult minds as to what goes on inside the mind of a young child trying to deal with this. It’s also not a post soliciting help or sympathy. We are prayerfully taking our own steps. It’s a dialogue for parents on this road alongside us. You are not alone.]

Espressos of Faith has dedicated entire blog categories for more discussion on Anxiety/OCD/Depression and ADHD.

*This blog can also be found at Mom 2 Mom Monday Link-Up, Make a Difference Mondays Link-Up, and Simply Inspired Wednesdays Link-Up.

Great resources: Positively Atypical! and Dr. Hallowell

Goodreads Book Giveaway

Not Just on Sundays by Bonnie Lyn Smith

Not Just on Sundays

by Bonnie Lyn Smith

Giveaway ends March 25, 2015.

See the giveaway details
at Goodreads.

Enter to win

 

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Taking the Word “Limitation” out of Our Vocabulary

Taking the Word “Limitation” out of Our Vocabulary

The other day the sweet mother of one of my son’s friends told me after a playdate that my son has a real “calming/mellowing effect” on her son.

Um, what now?

This is my Hyper Tigger—the one with ADHD. “Calming,” did you say? Most days I do not feel calm in his presence. He bounces around and brings endless joy, but he isn’t exactly what I’d call

still

or

calm.

Surely she’s confusing which parent I am.

But that was my first mistake: thinking that my son couldn’t be strong in an area of weakness.

What looks like a limitation from one angle is usually a blessing from another. Why couldn’t he be soothing to someone else? Why does hyper have to define him 24/7?

Does it?

My second mistake was not believing her the first time. This is the second time she has told me that. I doubted my own son because of my own limited experience and the label put on him.

You know what I see in that? God working through our weaknesses. They don’t have to be limitations when we are willing to see the labels of man as just that: “labels.” I had new appreciation for my limited view into the future when really I have no clue what weaknesses will be used for good or become strengths over time.

Who is to say a socially awkward child doesn’t turn out to be an amazing therapist, minister, salesperson?

Do fine motor strength issues rule out a future in surgery or art?

Does a struggle to read in early intervention years mean someone can’t end up a teacher—or a writer?

What about a speech delay or impediment? Does that mean no public speaking?

My poor spelling child works harder than either of my other two kids. A love of reading would have helped, but this child didn’t read as easily. Because of hard work in this area, this one may surpass us all.

So it made me ask myself: Why do we stop ourselves in the middle of the road (where labels weigh us down), accept what is given, and not consider getting across it?

If my father had accepted the first prognosis from the first medical professional 34 years ago with his first cancer, he would have welcomed a death sentence: terminal. Um, he’s still here.

He decided to cross the road.

I am socially anxious and very inward. Some days I have to talk myself into leaving the house, and yet, when I am where God wants me to be, with the people He wants me to either learn from, receive from, or minister to, He makes it easy. Suddenly, I’m not such a buffoon. I have some right words to say. And I walk away knowing something more about Him and about what amazing paths I can travel down when I don’t stop right where someone told me I had to because I wasn’t “strong” in that area.

I challenge us all to find where we have believed a label as a permanent mark on our lives, where we have sat in the middle of the road accepting our plot.

I’d like to suggest that permanent mark should be considered more of a washable marker. It’s movable, sometimes—but not always removable. It doesn’t have to stay there. Sometimes we can push it further. Sometimes we can push it entirely off.

Does that mean we will change every diagnosis? Every handicap? Every disease?

Not necessarily, but it does mean we look beyond it and see where we can act in spite of what was spoken to us. I have a dear friend fighting to raise money and awareness for her Type 1 Diabetic child. Do you think as a mother she is accepting that diagnosis and just rolling over and taking it? No. No, she is not. Another friend was told her child would not likely walk. She didn’t accept that. Friends beating up cancer with everything in them. Friends hoping and praying their “on the spectrum” children become functional adults, able to hold jobs and maybe even have families someday. A severely autistic child who writes amazing poetry. Folks climbing out of addiction and hoping their day count of sobriety continues to climb.

For me, because of my faith, I call in the impossible because I’ve seen too many very real, modern day miracles to think God can’t and doesn’t still move in our lives when we ask.

For me, limitations are just invitations to ask Him to wow the world with what He can do.

I realize I’m not the first to write on this. I also know some of us are sitting in the middle of the road still, heavy and weighted down, not sure how to get up and move on. I also know not everyone reading this shares my faith in Christ.

But can we agree to get out of the road where circumstances, prognoses, medical professionals, special education staff, teachers, family members, tests, etc., dropped some kind of definitive statement on us, and can we start walking to the other side?

Because when we stay stuck in those labels, those definitions, we end up getting hit by everything else coming down that road. We get beat up, discouraged, worn down, until hope is roadkill flattened in front of us, and we’re left to peel it off the pavement just to get some of it back.

When I am in that place, I want people to hold my hand and remind me to finish crossing, to be bold, to hold on, to pray for promise and hope. And I want to be the warm hand helping others look beyond these things.

Why can’t my Tigger nurture, calm, and settle another little soul his age? Why is it so hard to believe he is defined by far more than ADHD, and why wouldn’t God want to show the world His glory by working through how we see Little Man and showing us what is possible if only we’d believe?

I don’t know, but this one innocent, yet powerful statement from this sweet mother taught me everything I need to know to get out of the road right now. Will you come with me? It’s much better on the other side, where hope and possibility reside.

Luke 1:36-37, an angel of the Lord talking to Mary, telling her she would have a son, ESV
“And behold, your relative Elizabeth in her old age has also conceived a son, and this is the sixth month with her who was called barren. For nothing will be impossible with God.”

Luke 18:27, Jesus speaking, ESV
But he said, “What is impossible with man is possible with God.”

2 Corinthians 12:9-10, Apostle Paul speaking, ESV
But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me. For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions, and calamities. For when I am weak, then I am strong.

 

 

 

 

 

 

 
2 Comments

Posted by on November 4, 2014 in ADHD, Renewing Our Minds

 

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A Letter to Parent Volunteers in Elementary School Classrooms

classroom

The following blog is written the way that it is, in letter format, because of a wise friend who saw my Mama Pain in a brief vent on social media today and encouraged me to write something that informs parents from the perspective of a parent with a child who struggles. He is often the recipient of harsh treatment from perhaps well-intended parent volunteers. Sometimes, this has happened right in front of me at volunteer times in the classroom, and sometimes, my child tells me days later, in tears. He is sensitive, but not overly so. He knows not everyone will jive with everyone else. In his short school tenure, at age 8, he has had teachers he really clicked with and those he hasn’t. He knows not every person will really try to know him, and that’s okay. That’s true of life.

But I have been growing very weary of parent volunteers going in to a lower elementary school classroom lacking humor, patience, and compassion, especially for kids with struggles or who think outside the box, and “playing uptight parent” to someone else’s kid. I know the lower elementary school teachers benefit from rotations of parent help for reading times, math games, and research, and we have wonderful staff, but if a parent is going in to exert a power trip over little kids, perhaps they should not volunteer. I volunteer to help children and teachers but also now to babysit out-of-line parents. Happens every year.

Not on my watch.

In my opinion, being that harsh to a child with or without struggles (not their own child…mine or someone else’s) is without excuse. The school environment should be a safe place for little hearts.

Some of the most cutting, sharpest comments are made to my child by parent volunteers. Little Man sat at my breakfast table this morning in tears thinking he had done something wrong when he was being creative. (I cleared up the details of what was said, why, and if there was misbehavior or teacher intervention. There wasn’t.) His exact words: “She [snappy parent volunteer] connected with all of the other kids there but me. She didn’t make a good connection to me.” This was after letting me know what she did say to him. I spent part of the morning praying down my mother rage. I don’t even know her or her name.

It motivated me to write this. Thank you for reading it.

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Dear Elementary School Parent Volunteer:

There are a few things I would really like us all to know, to think about, to swirl around in our minds and hearts before we enter the classroom to help with math games, reading centers, research units. Going to volunteer training is not enough. We must go in deeply, firmly rooted in an understanding that we are not the parents of every child in that classroom. We can’t possibly know each situation, each struggle, each backstory, each tender heart. We do not know what each child faced that morning over his/her bowl of cereal.

  • He could have heard his parents threaten each other with divorce for the tenth time this week.
  • She could have heard that anger rising in the voice of a violent family member or encountered the malaise of a depressed or ill parent.
  • He could have had his fifth meltdown because the tag on the neckline of his shirt was irritating him.
  • She could have had a panic attack about the small oral presentation she had to give today for her book project.
  • He could have washed his hands 12 times before, during, and after getting dressed because he was worried about germs.
  • She could have struggled to get her math facts the night before, and everyone else in the class seems to catch on more quickly.
  • He could have struggled to write neatly and color in the lines because of a fine motor weakness.
  • She might not be able to focus because something happened on the bus on the way in that was too loud for her, too much for her to process at once, and she’s still in the middle of processing it.

Dear Parents: We don’t know whom and what we are walking into when we go in to help. We are not experts on the issues of all children. Let’s face it: Some days we don’t always even know the “right” approach for our own. We do not have full perspective.

We are not there to parent other parents’ children. The class discipline is really up to the teacher’s discretion and discernment.

Even if some of us have degrees in special education, social work, or child/family therapy, if we do not live with a child with those challenges, we only know the outside story. We do not know the inside one. We do not know what it is like to work around the challenges and struggles, big or small, typical or atypical, on a daily basis of those specific kids.

We also do not know what it is like to be a child with adults towering over him/her trying to be part of a “solution,” one that is assumed, while the child is silently trying to figure out where and why he/she is failing expectation.

Here are some things we need to remember: Everyone struggles with something. In any home, there may be:

  • academic super-achievers who are a little immature or socially behind
  • dyslexia and other learning disorders
  • developmental delays
  • autism spectrum
  • ADHD/ADD
  • anxiety/depression (yes, young children can legitimately struggle with these for a host of different reasons)
  • speech delays
  • processing disorders
  • a combo meal of several of these

And the list goes on.

Really, do any of us know what those all look like in individual children and families? Are we reading IEPs before we go into the classroom as parent volunteers?

Of course not.

So we need to allow for the fact some kids are going to be slower to process something, have trouble focusing, melt down emotionally more than another kid. We don’t have access to this information, but we absolutely should go into the classroom to volunteer wearing:

  • grace
  • patience
  • compassion
  • understanding
  • kindness

I’ve had a parent hover over my child who couldn’t complete a drawing/coloring task anywhere near the time other kids could. She kept on him as if he were her personal “fix-it” project for the day.

I wanted to say to her:

“That is not why you are in the classroom today. You need to let the school specialists help my child in that way. Your job is to encourage him, perhaps kindly redirect, but to help him at whatever point he is at. It is not to tell him over and over again he isn’t as quick as everyone else and to hurry up and catch up, and why is he coloring like that?

Your job is to keep him on task, to make sure everyone is including each other, to build these kids up, to make sure they understand the instructions.

Your job isn’t to roll your eyes when one kid is fixated on dinosaur facts. Or another talks louder than others.

Can you see inside his ear? Do you know if he has a hearing problem or processing disorder?”

No, we just work around whatever we find in the classroom. We don’t try to fix, control, or judge it.

One day, my child could not move beyond the glue on the end of his fingers that came off of a Valentine someone gave him. He thought it was a germ. A volunteer yelling at him to hurry up and finish his own Valentine wasn’t going to help him stop fixating.

Again, the voice in my head had an internal conversation with her:

“Because you don’t live with him, you don’t know that he is having a massive, internal panic attack, one that, not being visible, is almost more crippling. It’s not your fault you can’t see it, but please approach him with kindness and not judgment. He is my ‘project.’ He was given to me. Along with specialized staff, I’ll take it from here. Please know your part is just to do classroom tasks and not to make everyone fit into the same size box of expectation.”

To be fair, I see so many parent volunteers do it well. Because they bring grace in with them—and the perspective that they do not “know it all” and can only come at it from their own limited experience. Just like mine is limited. We each come in with only one piece of the puzzle.

Like all of the adults in the school building directing small kids, volunteers make an impact and leave an imprint. My son often receives the message that (his exact words): “She connected with all of the other kids there but me. She didn’t make a good connection to me.” Young kids are smart, intuitive, and sensitive. They know when adults don’t like them or are irritated.

For 45 minutes, can we please just walk in, turning off the following buttons in our minds and hearts (we all have them):

Judgment
Diagnosing
Criticism
Impatience

Can we please go, approaching tender hearts as if we didn’t have all the answers yet?

Because none of us do—even in our own homes and situations.

Let’s take the burden off ourselves and let the staff “figure out” the kids. Some kids might not read as fluently as the rest of the class or color inside the lines. Let’s meet them right where they are and just grace them to the next logical step, or even just help sustain the learning of the moment.

Today might be a rough day. A child may have already been necessarily corrected by several staff at this point. He/she might be weary, frustrated, or sad.

If you have three to five adults (parents, teacher, principal, special services teachers, specials teachers) in your life every day that you expect to be leading you, having several more in your face—some outright strangers—can add stress when you’re 5, 7, 9.

Let’s go in and be stress-reducers, speaking in soft tones.

Let’s remember how our kids are all still works-in-progress—how we all are.

Sincerely,

The Concerned Parent of a Child Who Struggles

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In the middle of writing Not Just on Sundays, I heard the squeaky, growing voice of my youngest child begging to be heard, and a children’s book deposited itself into my heart; I asked all three of my children to collaborate with me. It attempts to shed light on how it feels to be a child when adults aren’t really listening to them. Why Don’t Grow-Ups Listen? should be out in 2015/16.

*This blog can also be found at Mom 2 Mom Monday Link-Up #25, Make a Difference Mondays, Pick Your Pin TuesdayFaith-Filled Fridaysand Grace & Truth Link-Up.

 

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Tracking with the ADHD Mind: Journey into Incredibleness

Tracking with the ADHD MindI was in the car with my 8 year old son this morning on the way to drop him to school. In the short 10 minute ride, his ADHD mind took me from perfect hairstyles for his waves and curls to new recipes he’d like to try when he opens his own “kitchen” next summer. He also talked about different ways he could get his friends interested in his latest toy subject. He had a plan for so many things.

But his plans were happening simultaneously. It was multitasking on a multi-core microprocessor level. He went so quickly I thought he would heat up and shut down, like my old Mac. I kept waiting for the abrupt blank screen.

And on these drives we have, I admittedly sometimes struggle with it. When I’m in rush hour traffic getting him somewhere, I don’t always enjoy hearing how Obama could take more authority to help people in XYZ ways, or we could get the toilet to flush more efficiently this way, or what do I think if he varies the current Pokémon toys just slightly to get a different customer base when he runs his own toy factory someday. And how about that ant poison recipe he wrote down in secret and made me promise to keep his formula safe? I can often be heard under my breath in a soft whisper: “Oh, God, please make it stop for second so I can drive. I can’t process this right now.”

But Little Man can.

He hears all of the signals of information at once, and from them, he brainstorms nonstop how to make the world a better place.

So, today, when I had a more leisurely drive, I listened better. I needed a full shot of espresso to keep up with him, but it fascinated me. And I suddenly didn’t want to stop him. I didn’t want to tune to just one channel of that amazing mind. I was greedy. I wanted all of his thoughts at once. I wanted him all ADHD-ed out, the pure, original him. For a few minutes, I think I was actually jealous—or at least deeply admiring.

I realize ADHD comes with its struggles and companion diagnoses. I know OCD, anxiety, depression, and learning disabilities often hitch a ride with these phenomenal minds. We have our own struggles with the combo meal served up frequently with ADHD in our house, and they are not easy. If I’m honest, of course, I don’t love those obsessive, wigged-out moments. Not at all.

And I know the level of creativity and intellect can vary with each individual.

I also fully understand why teaching these jet engines can have its challenges, and I support the medication and strategies offered by specialists in the field, when used appropriately.

But I want to listen more when he rattles on without pause. I want to be his stenographer. I am curious which ones, out of the multiple scenarios, solutions, and thought processes going on in his head—if we write them down—stand a chance of being acted upon someday.

Some see it as “mind clutter.” I see it as him hearing the many ideas God gives him at full speed ahead. And I see him racing after them, with great joy at hearing all of that at once.

But the joy stops when he sits down to focus on math problems at a desk for solid amounts of time, or when there is a school assembly he has to be still for. At those moments, he needs to hear one frequency only. And that is very difficult.

But there is a very happy, Tigger-y* bounce when he can be fully himself and run wild after the wind, with God whispering gusts of incredibleness straight through his mind. And his mind can keep up with it all, unlike mine, which would need a butterfly net to hold on to all of those thoughts at once.

And in the moments when we can, I choose joy for him. His jumble of thoughts propels him forward; it excites him about life and everything there is to discover and create. To take that from him all of the time is to erase shades of Little Man—and I love him bursting forth in full color.

For more on viewing ADHD as a blessing in disguise, refer to:

Driven to Distraction: Recognizing and Coping with Attention Deficit Disorder from Childhood through Adulthood by Edward M. Hallowell and John J. Ratey
http://www.drhallowell.com
http://www.johnratey.com

Why A.D.H.D. Doesn’t Mean Disaster by Dennis Swanberg, Diane Passno, and Walter L. Larimore
http://www.dennisswanberg.com
http://drwalt.com

Our personal journey through ADHD, OCD, depression, and anxiety can be read about more in Not Just on Sundays: Seeking God’s Purpose in Each New Day.

*The Tigger tiger of Winnie the Pooh fame

**This blog has been shared at Pick Your Pin TuesdayA Little R&R Wednesdays, RaRa Link-UpWomen With Intention Wednesdays, Me, Coffee & Jesusand Coffee & Conversation.

 
7 Comments

Posted by on September 4, 2014 in ADHD, Anxiety/OCD/Depression

 

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